every once in a while you come across someone's story that just pulls at your heart more than others. This is one of those. This darling lady has lost her young son to a rare disease called:
Their other son has also been diagnosed and they are doing all they can to make people aware of rare diseases and have written some children's books to raise much needed funds.
For full details, please hop over to her blog and read the wonderful story of this family and their heart break, and see if you can help in some way....so go and check out
Scrampinmama , thanks very much
Have a great day, many blessings Hilde